murphyandhislaw

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The Diving Bell and the Butterfly

Jean-Dominique Bauby

published: 1997, read: 9/9/26
132 pages, genre: Biography
rating: 7/10, normalized: 6.667/10
-0.23σ worse than average
-0.026σ or -0.017/10 worse than average in Biography genre
-0.708σ or -0.101/10 worse than average recommended by Scott
Recommended by: Scott

Memoir by a fashion mag (Elle) editor who suffers a massive stroke in '95 leaving him in a physically vegetative, but mentally cogent state referred to as "locked-in syndrome." He died of pneumonia in '97 shortly after the book's publication.

Bathtime

I even derive a guilty pleasure from this total lapse into infancy. But the next day, the same procedure seems to me unbearably sad, and a tear rolls down through the lather a nurse’s aide spreads over my cheeks. And my weekly bath plunges me simultaneously into distress and happiness. The delectable moment when I sink into the tub is quickly followed by nostalgia for the protracted immersions that were the joy of my previous life. Armed with a cup of tea or a Scotch, a good book or a pile of newspapers, I would soak for hours, maneuvering the taps with my toes. Rarely do I feel my condition so cruelly as when I am recalling such pleasures.

Guardian Angel

On my birthday, Sandrine managed to get me to pronounce the whole alphabet more or less intelligibly. I could not have had a better present. It was as if those twenty-six letters had been wrenched from the void; my own hoarse voice seemed to emanate from a far-off country. The exhausting exercise left me feeling like a caveman discovering language for the first time. Sometimes the phone interrupts our work, and I take advantage of Sandrine’s presence to be in touch with loved ones, to intercept and catch passing fragments of life, the way you catch a butterfly. My daughter, Céleste, tells me of her adventures with her pony. In five months she will be nine. My father tells me how hard it is to stay on his feet. He is fighting undaunted through his ninety-third year. These two are the outer links of the chain of love that surrounds and protects me. I often wonder about the effect of these one-way conversations on those at the other end of the line. I am overwhelmed by them. How dearly I would love to be able to respond with something other than silence to these tender“calls. I know that some of them find it unbearable. Sweet Florence refuses to speak to me unless I first breathe noisily into the receiver that Sandrine holds glued to my ear. “Are you there, Jean-Do?” she asks anxiously over the air.

And I have to admit that at times I do not know anymore.

Our Very Own madonna

This chapter made me cry. There is so much detail relative to the other chapters, the whole trip to Lourdes is burnt into his mind's eye which he then blinks back out, one letter at a time. He remembers vividly, but no detail of the book _ Trail of the Snake_ which he escaped within from their domestic quibbles.

The Vegetable

Other letters simply relate the small events that punctuate the passage of time: roses picked at dusk, the laziness of a rainy Sunday, a child crying himself to sleep. Capturing the moment, these small slices of life, these small gusts of happiness, move me more deeply than all the rest. A couple of lines or eight pages, a Middle Eastern stamp or a suburban postmark…I hoard all these letters like treasure. One day I hope to fasten them end to end in a half-mile streamer, to float in the wind like a banner raised to the glory of friendship.

It will keep the vultures at bay.

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